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Comfort Gifts, Hospital Waiting Room Revisited; I would rather drink Clorox than hospital waiting room coffee.
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I would rather drink Clorox than waiting room coffee. But of
course I drink it, and I'm glad it's there. "How nice," I
think, "that they provide this." The only other thing that
always seems to be in a hospital waiting room is 1000-piece
jigsaw puzzles. I don't know about you, but when I'm
stressed, those tiny pieces are too much; however the length
of time it would take to complete one is fitting. I've been
back to same waiting room for weeks. How about you?
I find the circumstances in a hospital waiting room to
include, as one of the astronauts said about space flight,
"all the elements necessary for a murder."
Things have improved over the years, but they'll always be
trying. Actually, that old adage first attributed to a
bomber pilot fits: It's hours and hours of boredom
punctuated by stark terror.
Of course it can also be punctuated by incredible relief,
and abundant joy, and that's part of the equation. Emotions
are running high. Everyone there is concerned and waiting
for information, waiting for a decision. Waiting.
So what helps? Information is always helps. If this is new
territory to you, here are some tips gleaned over the years:
DIVERSION
Bring light reading material and other amusements, like your
laptop. And be glad for laptops. One of the worst fights I
saw in a waiting room - and this the Pediatric Intensive
Care waiting room, one of the saddest places on earth - was
over the single electrical outlet available. There were
numerous fights in this particular waiting room which, at
the time included a dorm with bunks for sleeping, and which,
because it was pediatric, included young folks, arguably
more volatile. Many of us were there for weeks and began to
get involved in each other's lives and squabbles, like a
group thrown together on a desert isle. Only worse.
At night, in the dorm, the snoring made me want to kill
someone, and the sobbing made me want to convert to Buddhism
and learn how to remove all suffering from the world. I
sought the mercy of sleep. It was hard to come by, and when
we don't sleep well, everything is worse. Which brings up
the next point.
There was someone on-call to come up and mediate fights, and
guess who it was? The chaplain. Who else could handle this
emotionally-charged cauldron of pain? So know that when
needed, there's a chaplain there. There's a chaplain and a
chapel in most hospitals. Seek and ye shall find.
FIGHTS
Fights? Let's say aggression. When you're
emotionally-charged, that's one release of the tension, and
in the hospital there are numerous targets - the doctors who
don't show up; the resident who treats you to his intellectual
musings which have no conclusion, which leaves you more
confused and scared; the person who removed your sleeping
materials from your chairs as if they don't know you've
marked your territory; the nurses who tell you to shut off
your cell phone or get out, visiting hours are over; or your
own Aunt Martha who just won't shut up about her arthritis,
her bowels, and her cat.
SENSE OF HUMOR
A sense of humor goes a long way. In fact some hospitals
now have "laughing rooms" which I've read about, but not
seen. I suppose they have funny videos. A good laugh is a
great stress relief. You don't feel like laughing, of
course, but do it anyway, and don't be apologetic. It's a
physiological remedy to unrelenting stress that costs less,
than Xanac, is more readily available and has fewer side
effects. When you go back to your hotel room at night, rent
the funniest movie you can find and laugh.
HELP!
Take advantage of other help that's available. The
admissions person is one source; they're also planning a
discharge program from the moment of admission, so go find
out.
There are volunteers around, praise the Lord, and I plan to
be one one day when I'm freed from the obligation of having
to make a living. Often there's one sitting at the desk in
the waiting room, by the phone. They often wear smocks and
have nametags.
One of them heard me lamenting and offered to drive me to
and from a Wal-Mart to pick up extra clothes and toiletries.
She said she would just sit in her car and wait and "Please
take all the time you need." I tried to tell her what this
meant to me. She simply replied, "It's okay. I know about
this."
Also nearby hotels often offer greatly reduced rates for
hospital visitors. Ask.
NUTRITION
Now let's talk about nutrition. The last thing you need is
a sugar high, and if there's any time you're after comfort
food, it's in a hospital waiting room. Use what
self-discipline you can. People will bring homemade
cookies, the ultimate gesture of comfort food and caring,
and they will tempt you, but after the 4th you'll be all
jitters, and after the 5th day of this, you'll have put back
on those 5 lbs. you worked so hard to get off. The remedy?
Well, there's always a hospital cafeteria, and you can also
bring healthy snacks.
Eat something healthy when you can; in other words don't
miss a chance to have a good meal. Food and transportation
can become iffy. If you're prone to hypoglycemia, bring
along peanut butter crackers or nuts. Being concerned about
fat and calories when consumed with the munchies, I bring
containers of ginger snaps, Toastys, and key lime meringue
cookies to share.
ETIQUETTE
Remember your manners when others drop by to visit. Say
"Thank you for coming." They want to help, feel there's
little they can do, and will appreciate your acknowledgement
that they have indeed "done something." Send thank you
notes when it's all over.
INFORMATION
Getting the information around to those who can't be there
can be solved through cell phones, of course, but also by
setting up a blog. You can set one up free at
www.blogger.com .
EQ
Now let's talk about your EQ skills, your emotional
intelligence. There's not much use for the intellect in the
hospital waiting room, while the emotions will get a big
workout.
Hopefully there's someone in your group who's less emotional
and more focused. This is a good person to run information
through. When you're listening to "the news," they can hear
the facts, separating them from fantasy fueled by fear or
hope. Perhaps you're this person!
Practice self-soothing techniques. Whether it's breathing
deeply, saying mantras, going for walks, playing with the
kids that are around, or solving math equations, do things
that calm you. You don't need more physiological stress.
De-escalate and de-intensify. Because emotions are running
high, the members of your group can get into confrontations.
Be the one who calms things down. No one can think until
they've calmed. Don't go home with a well patient and a
harmed relationship because you didn't control yourself.
Share your wisdom and experience and be the voice of reason.
As the diagnoses and prognoses come out - "It looks bad,"
and "Chances are slim," remind yourself - and remind the
others - that no one really knows for sure. I've heard
predictions from doctors that never came true. I've heard
them do 360 degree turnarounds. I've seen one doctor
come in and completely reverse the diagnosis of another.
I know people deemed "terminal" who are still walking
around today. Doctors do their best, and hopefully you
have a good one, but the outcome is in other hands, so
there is always hope. Period. (At the point where there
is no hope, you will know it.)
ADVOCATE
Now as to having the best doctor, one of your functions (or
of someone in the group) is to advocate for the patient. If
you should happen to be in a teaching hospital, you may be
handed from doctor to doctor. Hopefully this won't be the
case. If it is, there can be more confusion, so hang in
there.
At a teaching hospital you will also be dealing with
residents. How would you know a resident from a doctor?
Ask. Residents are learning. They must perform like a
doctor, but the final authority is not theirs, and also they
are learning. This means their manner can be rough and even
offensive. (My doctor friend who trains residents tells me
that sometimes they can tell him every detail about the
patient's chart, but when he asks them the sex of the
patient, they cannot tell him.) This also means they may
"think aloud" going through all the things the text book has
told them it might be, and that they're ruling out. This
can be scary.
For instance, a friend of mine was in the hospital with
anemia, and the resident kept talking about leukemia. Big
difference. When the attending physician arrived, he
dismissed leukemia with the flick of a wrist. You see?
Now as to your doctor . if you're been assigned one, check
him out. (A good physician has nothing to hide.) The
Internet has information. The hospital has materials. Find
out where he went to school, where he got his training, how
many of these procedures he's done. You know the old joke -
"The good news is your doctor graduated first in his class.
The bad news is, it was last year."
Give the physician you have a fair shot, but know that you
can change physicians, and also hospitals, if you choose.
If the patient is about to have brain surgery, find out
who's the best physician in the country for this procedure.
Ask a doctor you know whom she would go to herself, not whom
she'd refer patients to. There are alternatives to consider
- can the person afford to fly elsewhere? Does the
insurance cover this? How long can it wait? Will it be
lengthy and they'll have to get accommodations in a strange
town or fly back and forth? If so, does being away from the
familiar outweigh other benefits? Is he young with kids at
home, or retired and his wife can easily accompany him
anywhere?
You may also want to investigate the condition on the
Internet. Who knows what "phakomatosis" or
"oliodendroglioma" means.
THE CLOTHES
This isn't a time to worry about your butt looking big.
Wear something comfortable. I recommend something
with pockets. It doesn't hurt to wear something bright
and cheerful and be a beacon of light.
And on a final note, if you want to do something helpful,
donate something to a waiting room at your local hospital -
magazines, books, toys. You get the idea.
(c)Susan Dunn, MA, Emotional Intelligence Coach,
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